I think about this sweet little girl and her family often. Quinn has a very rare genetic neurodegenerative disease called Niemann-Pick Disease, Type A. This leads to an early death, anywhere from 15 months to around 3 years. Once she was diagnosed her family started a blog. Reading through it I am amazed by Quinn’s parents strength and courage. They came up with “Quinn’s List”. A list of things they feel every girl should do in their lifetime and hope to do with Quinn. They want to give her the best life they can while she is still here. Things like go to the American Girl Doll Store, have a slumber party, dress like a princess, go to Disney, ride a horse … you can see the rest of the list on their blog http://www.teamlinzer.com/
If you think you might be able to help the family in fulfilling anything on this list please let me know or contact the family though their blog. You can also donate on the Facebook page created for her here: A-Benefit-for-Quinn
Quinn wasn’t her smiley self during our session so we had to cut it a little short. She was so tired she actually fell asleep on my studio bed, which of course I had to photograph. I’m just glad I could capture her cuddling with her Mom, where it was obvious she was happiest.
Thank you Eileen and Brett for being such an inspiration. You are always in my thoughts and prayers.